Abstract
Introduction: Caregivers of people with chronic disease adopt a new role that may involve responses such as anxiety, depression, and loneliness. Objective: To describe and correlate the variables of adoption of the role of caregiver, depression, anxiety and loneliness in family caregivers of people with chronic disease in the Guanentina province in San Gil, Santander (Colombia), during the year 2021. Methods: Descriptive study, cross-sectional analysis carried out with 112 family caregivers of people with chronic diseases. A characterization sheet and the ROL, UCLA and HADS instruments were used. Results: the profile of the caregivers was predominantly female and average age of 49 years; married, single or in civil union; maximum degree of high school education; of household occupation and low and low-middle socioeconomic level. High levels of anxiety were found in 18,3% of them, depression in 4,3% and loneliness in 0,9%, in addition, satisfactory levels of adoption of the caregiver role were evidenced in 100%. A weak correlation was found between anxiety, depression and loneliness and an inverse correlation between these variables with the adoption of the caregiver role. Similarly, a direct correlation was found between the patient’s age and the months of diagnosis with the hours of care per day. Finally, anxiety and depression were found to be predictive of role adoption, of anxiety and role adoption on depression, and of loneliness and depression on anxiety. Conclusions: the caregivers had normal levels of anxiety, depression and loneliness that, when correlated with each other and with the adoption of the caregiver role, validate the idea that, if caregivers are intervened in their trajectory with guidance on their role in terms of the tasks, the organization and the answers can contribute in the reduction of anxiety, depression and loneliness. Discussion: The direct connection observed between loneliness, depression and anxiety is consistent with what has been reported in previous studies with caregivers. In accordance with what has been reported in the literature, satisfactory performance of the role facilitates the outcomes in caregivers, in this case, the moderation of anxiety, depression and loneliness.
References
Organización Mundial de la Salud. La OMS revela las principales causas de muerte y discapacidad en el mundo: 2000-2019 [Internet]. Ginebra: OMS, 2020. Disponible en: https://www.who.int/es/news/ item/09-12-2020-who-reveals-leading-causes-of-death-and-disability-worldwide-2000-2019
Vos T, Lim SS, Abbafati C, Abbas KM, Abbasi M, Abbasifard M, et al. Global burden of 369 diseases and injuries in 204 countries and territories, 1990– 2019: a systematic analysis for the Global Burden of Disease Study 2019 [Internet]. The Lancet. 2022; 396(10258): 1204–1222. doi: https://doi. org/10.1016/s0140-6736(20)30925-9
Ministerio de Salud y Protección Social. Indicadores básicos en salud 2021: Situación de Salud en Colombia. [Internet]. Bogotá: MSPS; 2021. Disponible en: https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/VS/ED/GCFI/indicadores-basicos-salud-2021.pdf
Ministerio de Salud y Protección Social. Informe Indicadores SINERGIA: Primer semestre 2022. [Internet]. Bogotá: MSPS; 2022. Disponible en: https://www.minsalud.gov.co/sites/rid/Lists/ BibliotecaDigital/RIDE/DE/PES/informe-sinergia-primer-semestre-2022-minsalud.pdf
Delgado Barrera NA, Lucano Yaluzan ME, Marroquín Luna DA, Enríquez Gómez AK. Bienestar ocupacional del cuidador de adultos mayores que asisten a la parroquia Santiago Apóstol de Pasto, Colombia. Rev Criterios [Internet]. 2022; 29(2): 222-229. doi: https://doi.org/10.31948/rev. criterios/29.2-art13
Trapp SK, Ertl MM, González-Arredondo S, Rodríguez-Agudelo Y, Arango-Lasprilla JC. Family cohesion, burden, and health-related quality of life among Parkinson’s disease caregivers in Mexico. Int Psychogeriatr [Internet]. 2019; 31(7): 1039-1045. doi: https://doi.org/10.1017/s1041610218001515
Rippon D, Hand A, Dismore L, Caiazza R. The impact of the COVID-19 pandemic on informal caregivers of people with Parkinson’s disease residing in the UK: A Qualitative Study. J Geriatr Psychiatry Neurol [Internet]. 2022; 21: 8919887221135555. doi: https://doi.org/10.1177/08919887221135555
Carreño S, Chaparro L. Adopción del rol del cuidador familiar del paciente crónico: Una herramienta para valorar la transición. Rev Investig Andin [Internet]. 2018; 20(36): 39–54. doi: https:// doi.org/10.33132/01248146.968
Zhou Z, Wang Y, Feng P, Li T, Tebes JK, Luan R, et al. Associations of caregiving knowledge and skills with caregiver burden, psychological well-being, and coping styles among primary family caregivers of people living with schizophrenia in China. Front Psychiatry [Internet]. 2021; 12: 631420. doi: https:// doi.org/10.3389/fpsyt.2021.631420
Cedillo AG, Grijalva MG, Santaella GB, Cuevas M, Pedraza A. Asociación entre ansiedad y estrategias de afrontamiento del cuidador primario de pacientes postrados. Rev Med Inst Mex Seguro Soc. 2015; 53(3): 362–367.
Rodríguez E. Síndrome del cuidador en familiares de pacientes con enfermedades mentales graves atendidos en el centro médico familymed. Tesis Universidad de Guayaquil [Internet]. 2022 [citado el 26 de octubre de 2021]. Disponible en: http:// repositorio.ug.edu.ec/handle/redug/60484
Organización Mundial de la Salud. Depresión. Notas descriptivas [Internet]. OMS; 2021 [citado 26 de octubre de 2021]. Disponible en: https://www. who.int/es/news-room/fact-sheets/detail/depression
Montero M, Sánchez J. La soledad como fenómeno psicológico: un análisis conceptual. Salud Ment [Internet]. 2001; 24(1): 19–27.
Kaddour L, Kishita N. Anxiety in informal dementia carers: A meta-analysis of prevalence. J Geriatr Psychiatry Neurol. 2020; 33(3): 161–172. doi: 10.1177/0891988719868313
Soylu C, Ozaslan E, Karaca H, Ozkan M. Psychological distress and loneliness in caregiver of advanced oncological inpatients. J Health Psychol [Internet]. 2016; 21(9): 1896–906. doi: 10.1177/1359105314567770
Collins RN, Kishita N. The effectiveness of mindfulness- and acceptance-based interventions for informal caregivers of people with dementia: A meta-analysis. Gerontologist [Internet]. 2019; 59(4): e363–379. doi: 10.1093/geront/gny024
Wen X, Wang D, Li N, Qin X, Gu D. The construction of the structural equation model of burden, benefit finding, and anxiety-depression of esophageal cancer caregivers based on Lazarus stress and coping theory. Ann Palliat Med [Internet]. 2021; 10(7): 7644–7652. doi: 10.21037/apm-21-1466
Barrera S, Romero R, del Sequeros Pedroso M, Olmos R, Vara C, Gallego L, et al. Stress, cognitive fusion and comorbid depressive and anxiety symptomatology in dementia caregivers. Psychol Aging [Internet]. 2021; 36(5): 667–676. doi: 10.1037/pag0000624
Chaparro L, Sánchez B, Carrillo GM. Encuesta de caracterización del cuidado de la diada cuidador familiar - persona con enfermedad crónica. Rev Cienc Cuid [Internet]. 2014; 11(2): 31–45.
Arias M, Carreño S, Chaparro L. Validity and reliability of the scale, role taking in caregivers of people with chronic disease, ROL. Int Arch Med [Internet]. 2018; 11 (34): 1-10. doi: https://doi. org/10.3823/2575
Velarde C, Fragua S, García JM. Validación de la escala de soledad de UCLA y perfil social en la población anciana que vive sola. Semer Med Fam [Internet]. 2016; 42(3): 177–183. doi: https://doi. org/10.1016/j.semerg.2015.05.017
Galindo Ó, Meneses A, Herrera Á, Caballero M, Aguilar JL. Escala hospitalaria de ansiedad y depresión (HADS) en cuidadores primarios informales de pacientes con cáncer: propiedades psicométricas. Psicooncología [Internet]. 2016; 12(2–3): 383–392. doi: 10.5209/rev_PSIC.2015. v12.n2-3.51016
Hou D, Chen Y xia, He D, Zhang X, Fan X. The relationship between caregiver reactions and psychological distress in family caregivers of patients with heart failure. J Cardiovasc Nurs [Internet]. 2020; 35(3): 234–242. doi: 10.1097/ JCN.0000000000000636
Petruzzo A, Biagioli V, Durante A, Emberti Gialloreti L, D’Agostino F, Alvaro R, et al. Influence of preparedness on anxiety, depression, and quality of life in caregivers of heart failure patients: Testing a model of path analysis. Patient Educ Couns [Internet]. 2019; 102(5): 1021–1028. doi: https:// doi.org/10.1016/j.pec.2018.12.027
Victor C, Rippon I, Quinn C, Nelis SM, Martyr A, Hart N, et al. The prevalence and predictors of loneliness in caregivers of people with dementia: findings from the IDEAL programme. Aging Ment Health [Internet]. 2021; 25(7): 1232–1238. doi: 10.1080/13607863.2020.1753014
Huertas C, Márquez M, Cabrera I, Barrerao S, Pedroso M, Romero R, et al. Sociocultural influences on the feeling of loneliness of family caregivers of people with dementia: The role of kinship. Int J Environ Res Public Health [Internet]. 2021; 18(9): 4700. doi: https://doi.org/10.3390/ijerph18094700
Ministerio de Salud y Protección Social. Lineamientos, orientaciones y protocolos para enfrentar la COVID-19 en Colombia [Internet]. 2020. Disponible en: https://www.minsalud.gov. co/sites/rid/Lists/BibliotecaDigital/RIDE/VS/ lineamientos-orientaciones-protocolos-covid19- compressed.pdf
Gobernación de Santander. En Santander más de dos millones de vacunas contra COVID han sido aplicadas [Internet]. 2021. Disponible en: https:// www.santander.gov.co/index.php/actualidad/ item/6246-en-santander-mas-de-dos-millones-de-vacunas-contra-el-covid-han-sido-aplicadas
Cacioppo S, Grippo AJ, London S, Goossens L, Cacioppo JT. Loneliness: clinical import and interventions. Perspect Psychol Sci [Internet]. 2015; 10(2): 238–249. doi: https://doi. org/10.1177/1745691615570616
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