Keywords
Neurologic manifestations
Palliative care
nursing
terminally ill
delirium
Palliative care
nursing
terminally ill
delirium
How to Cite
Ibáñez Alfonso, L. E., López Alba, J. A., Ramírez Ospina, M. A., Escobar Ruíz, M. C., & Sánchez Cárdenas, M. A. (2018). Neurological symptoms approach from the perspective of palliative care. Salud UIS, 50(3), 233–245. https://doi.org/10.18273/revsal.v50n3-2018008
Abstract
Objective: To address neurological symptoms from the perspective of palliative care through the review of available scientific literature taking into account the theoretical components of the Revised Symptom Management Model of Marylin J. Dodd. Methodology: Following the steps proposed by the PRISMA statement, a systematic review was made of the publications made between 2002 and 2017, of related articles that addressed neurological symptoms from the perspective of palliative care applying any of the components of the Revised Symptom Management Model
of Marylin J. Dodd, which include the experience of the symptom, the components of symptoms management strategies and the result in terms of the state and impact of the symptom. Results: according to the search limits defined within the inclusion criteria, 51 articles were selected to be analyzed from the perspective of palliative care applying the components of the Revised Symptom Management Model. It is evident that there is a significant amount of research that addresses delirium as a neurological symptom. Discussion: The multidisciplinary contribution often optimizes the control of neurological symptoms and the quality of life of patients and their families. In the same way, it is important to learn the use of scales and the early recognition of the impact of the symptom on the patient and his family to significantly improve the adaptation process. Conclusions: Although there are not sufficient innovative approaches to improve the management of symptoms as a whole and not as individual manifestations, education and training in the use of non-pharmacological interventions help to provide quality palliative care that complements to the traditional managements.
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5. Anderson GF, Chu E. Expanding priorities--confronting chronic disease in countries with low income. N Engl J Med. 2007; 356(3): 209-211. doi: 10.1056/NEJMp068182.
6. Corona T, Román GC. Multiple Sclerosis in Latin America. Neuroepidemiol. 2006; 26(1): 1-3. doi: 10.1159/000089230.
7. Pradilla G, León-Sarmiento FE. Esclerosis múltiple en Colombia: cerrando la brecha. Acta Neurol Colomb. 2007; 23(1): 3.
8. Fachado AA, Martínez NS, Roselló MM, Ria JJV, Oliver EB, García RG, et al. Spanish adaptation and validation of the supportive & palliative care indicators tool – SPICT-ESTM. Rev Saúde Pública. 2018; 52: 3. doi: 10.11606/s1518-8787.2018052000398.
9. Twycross R. Medicina paliativa: filosofía y consideraciones éticas. Acta Bioeth. 2000; 6(1): 27-46. doi: 10.4067/S1726-569X2000000100003.
10. Gooding MP, Amaya E, Parra M, Ríos AM. Prevalencia de las demencias en el municipio de Neiva 2003-2005. Acta Neurol Colomb. 2006; 22(3): 243-248.
11. Silva FA, Zarruk JG, Quintero C, Arenas W, Rueda-Clausen CF, Silva SY, et al. Enfermedad cerebrovascular en Colombia. Rev Col Cardiol. 2006; 13(2): 85-89.
12. Toro J, Sarmiento OL, Díaz del Castillo A, Satizábal CL, Ramírez JD, Montenegro AC, et al. Prevalence of multiple sclerosis in Bogotá, Colombia. Neuroepidemiology. 2007; 28(1): 33-38.
13. Oliver DJ, Borasio GD, Caraceni A, de Visser M, Grisold W, Lorenzl S, et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 2016; 23(1): 30-38. doi: 10.1111/ene.12889.
14. Carver AC, Foley KM. Symptom assessment and management. Neurol Clin. 2001; 19(4): 921-947.
15. León MX, Flórez SP, Torres M, Rengifo ML, Prada D. La importancia de evaluar síntomas y alteraciones funcionales en enfermedades neurológicas crónicas: experiencia en cuidado paliativo y rehabilitación en una institución colombiana. Aquichan. 2010; 10(3): 228-243.
16. Ferrell BR, Coyle N, Paice JA. Oxford Textbook of Palliative Nursing. 4ed. Oxford: Oxford University Press. 2015.
17. Dodd M, Janson S, Facione N, Faucett J, Froelicher ES, Humphreys J, et al. Advancing the science of symptom management. J Adv Nurs. 2001; 33(5): 668-676.
18. Santos CM, Pimenta CA, Nobre MRC. The PICO strategy for the research question construction and evidence search. Rev Lat Am Enfermagem. 2007; 15(3): 508-511.
19. Moher D, Liberati A, Tetzlaff J, Altman DG, PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009; 6(7): e1000097. doi: 10.1371/journal.pmed.1000097.
20. Cwiekala K, Parkyn B, Modliszewska K, Analysis of University of California in San Francisco (UCSF) Symptom Management theory and theory Implication for Persons with Neurological Disorders/Diseases. J Neurol Neurosurg Nursing. 2017; 6(2): 55-65. doi: 10.15225/PNN.2017.6.2.2.
21. Kerr CW, Donnelly JP, Wright ST, Luczkiewicz DL, McKenzie KJ, Hang PC, et al. Progression of delirium in advanced illness: a multivariate model of caregiver and clinician perspectives. J Palliat Med. 2013;16(7): 768-773. doi: 10.1089/jpm.2012.0561.
22. Mystakidou K, Parpa E, Katsouda E, Galanos A, Vlahos L. Pain and desire for hastened death in terminally ill cancer patients. Cancer Nurs. 2005; 28(4): 318-324.
23. Spoozak L, Seow H, Liu Y, Wright J, Barbera L. Performance status and symptom scores of women with gynecologic cancer at the end of life. Int J Gynecol Cancer. 2013; 23(5): 971-978. doi: 10.1097/IGC.0b013e318291e5ef.
24. Warth M, Kessler J, Bardenheuer HJ. Insomnia and autonomic function predict well-being in patients receiving palliative care. J Palliat Med. 2017; 20(12): 1395-1399. doi: 10.1089/jpm.2017.0032.
25. Covarrubias A, Hernández EE, Ruiz S, López C-Estrada M. Assessment of pain and other symptoms in Mexican patients with advanced illness. J Pain Palliat Care Pharmacother. 2014; 28(4): 394-398. doi: 10.3109/15360288.2014.959235.
26. Irwin SA, Pirrello RD, Hirst JM, Buckholz GT, Ferris FD. Clarifying delirium management: practical, evidenced-based, expert recommendations for clinical practice. J Palliat Med. 2013;16(4): 423-435. doi: 10.1089/jpm.2012.0319.
27. Morita T, Chinone Y, Ikenaga M, Miyoshi M, Nakaho T, Nishitateno K, et al. efficacy and safety of palliative sedation therapy: a multicenter, prospective, observational study conducted on specialized palliative care units in Japan. J Pain Symptom Manage. 2005; 30(4): 320-328.
28. Rubio ML, Adalid C, de Castro C. Dilemas éticos en el cuidado de un paciente terminal: una visión desde la asistencia primaria. Aten Primaria. 2001; 27: 621-622.
29. Sharon K. Delirium in older persons. N. Engl J Med. 2006; 354: 1157-1165. doi: 10.1056/NEJMra052321.
30. Gagnon P, Allard P, Gagnon B, Mérette C, Tardif F. Delirium prevention in terminal cancer: assessment of a multicomponent intervention. Psychooncology. 2012; 21(2): 187-194. doi: 10.1002/pon.1881.
31. Akechi T. Desire for early death in cancer patients and clinical oncology. Jpn J Clin Oncol. 1999; 29(12): 646-646. doi: https://doi.org/10.1093/jjco/29.12.646.
32. Alt-Epping B, Stäritz AE, Simon ST, Altfelder N, Hotz T, Lindena G, et al. What is special about patients with lung cancer and pulmonary metastases in palliative care? Results from a nationwide survey. J Palliat Med. 2012; 15(9): 971-977. doi: 10.1089/jpm.2011.0434.
33. Öhlén J, Russell L, Håkanson C, Alvariza A, Fürst CJ, Årestedt K, et al. Variations in care quality outcomes of dying people: latent class analysis of an adult national register population. J Pain Symptom Manage. 2017; 53(1): 13-24. doi: 10.1016/j.jpainsymman.2016.08.006.
34. Benítez M, Cabrejas A, Fernández R, Pérez M. Complicaciones psiquiátricas, neurológicas y cutáneas en el paciente con enfermedad en fase terminal. Aten Primaria 2002; 30 (3): 179-182.
35. Rifà F, Pons S. El final de la vida. Síntomas y complicaciones más frecuentes. Servicio de Oncología Médica. Hospital Universitario Son Dureta. Palma de Mallorca (Illes Balears). Manual SEOM de Cuidados Continuos.
36. Hosie A, Agar M, Lobb E, Davidson PM, Phillips J. Palliative care nurses’ recognition and assessment of patients with delirium symptoms: a qualitative study using critical incident technique. Int J Nurs Stud. 2014; 51(10):1353-1365. doi: 10.1016/j.ijnurstu.2014.02.005.
37. Verstraete L, Joosten E, Milisen K. Opinions of physicians and nurses regarding the prevention, diagnosis and management of delirium. Tijdschr Gerontol Geriatr. 2008; 39: 26-34.
38. Ben-Zacharia AB, Lublin FD. Palliative care in patients with multiple sclerosis. Neurol Clin. 2001; 19(4): 801-827.
39. Hildreth KL, Church S. Evaluation and management of the elderly patient presenting with cognitive complaints. Med Clin North Am. 2015; 99(2): 311-335. doi: 10.1016/j.mcna.2014.11.006.
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